Today's announcement of the discovery of the XMRV retrovirus' link to to a debilitating neuroimmune disease that affects more than one million people in the United States, Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS), is of particular personal signifcance to me, offering such hope for answers and eventual development of reliable treatment for those of us living with neuro-immune illnesses like CFS.
I will be posting more on my own involvement with this research study and why I am so excited on my personal blog in coming days (today has been a very bad day for me physcially, and I'm just not up to posting much at the moment) but in the meantime, please find out more about this amazing breakthrough research at http://www.wpinstitute.org/xmrv/index.html and be sure to read through the excelent FAQs they have posted for you there on the Whittemore Peterson Institute website.
Edited Oct. 10 to add link to my ongoing thoughts processing this news.
Other links related to this research:
NIH press release
http://www.stuff.co.nz/life-style/wellbeing/2948457/Virus-isolated-in-chronic-fatigue-sufferers
More links to come...
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3 comments:
When you are having physical not good days, is there anything that helps make it better or is it just something that has to go away on its own?
smooches,
Larie
So very sorry you have been greatly challenged, Jenni.
Praying God will send the relief you need soon, and that His grace sustains you.
Blessings,
Mary
So sorry that you are not feeling well. I hope that you see a few better days soon.
My family and I are so excited about this new gene discovery. Fatigue is one of my worst symptoms. I enjoy your blog. It is truthful and hopeful.
Take care,
Heather
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