Inspired Women Radio

Today I was blessed by the chance to chat with Diane Cunningham, founder of the National Association of Christian Women Entrepreneurs on her Inspired Women Radio program. We spent half an hour talking about how God can use us, no matter our circumstances. Grab your favorite drink and join us to be encouraged. :)

Family Life w/ Chronic Illness

I posted some updates on my personal blog yesterday about some exciting finding for Chronic Fatigue Syndrome (and potentially for a host of other neruo-immune, auto-immune and related conditions). (If you haven't heard much about the newly discovered human retrovirus XMRV, in the same family as HIV, read here first.)

If you are living with any kind of chronic health condition, you know the exhausting fatigue of just trying to "do life". Doing it well, doing it to your satisfaction, doing it to the fulfillment of your dreams, seems out of the question when pure survival is your state of being. What are your personal tips for "doing life well" within your limitations? Your limits might be financial, physical, health or other, but I would love to hear how you have risen to the challenge of harvesting hope in the midst of your heartache!

It was encouraging to me to read one such story this week as a reminder that not only am I not alone in these feelings of frustration, but that there are others "doing life well" while sick. It offered me hope that I might be able to better do the same. I honestly can't say I'm anywhere near where this woman is in my organizational skills (then again, she references a "sick day on the couch" as if it isn't her common state of being as it is for me), so I glean what I can from her story and don't burden myself with the rest. (Fertility-sensitive warning: Children and parenthood are referenced both directly and indirectly in the following resource.)

Making a House a Home When You Are Chronically Ill (and Chronically Fatigued!)

Contentment with Great (Weight) Gain

I posted this to my InfertilityMom and beauty blogs last week, and wow does it seem to have struck a nerve! I try not to usually cross post the same thing on more than a couple of blogs, but it sounds like this is one that has met a lot of hurting hearts right where they live, and so I share it here as well....

I've gained weight the past year and a half. A lot of weight. I was asked three times last week if I was pregnant because I'm carrying most of that weight right out front in my belly. I've had a hysterectomy and dealt with weight gain from medications and many medical issues. There's no doubt that my hormones are way out of balance. I weight more than 50 pounds more today than I did when I was pregnant with our daughter eight years ago. About 40 of those pounds have been packed on the past 20 months.


I am frustrated. I don't like my body. I don't like getting dressed. I don't like getting undressed even more. I have stacks of clothes I can't get into, some now 3 or 4 sizes too small, that I've been stashing away for when I can get the pound off.


Today I'm choosing a new attitude. Yes, I would still like to shed some weight, for health, for self-esteem, for so many reasons. But the fact is, this is my body right now. The same Holy Spirit lives inside this broken temple who lived here when I was at my healthiest, most fit, most attractive days. I can make choices that will keep this body as well-conditioned as I am able, but honestly some of this is simply beyond my control.


So today I went through all my clothes, those horded away for someday and those still hanging in my closet, many ill-fitting even though I try to still squeeze into them. To my delight I found a few things I honestly didn't think would fit that still work nicely. :) I kept about 5 things that are very near to fitting, just a tiny snug right now, because if I can loose a few pounds and under-grow what I have, I still have a tiny cushion of options before I hit yard sales and consignment stores for smaller sizes.


I sorted and organized all the rest and can walk into my closet and know that absolutely anything I pull off the hanger will fit on this body and I won't have to fight through five or six outfit changes (and accompanying tears and words of self-loathing) just to get dressed in the morning. And as a bonus, I now get to bless some friends with an abundance of clothing that can be enjoyed again, no longer a source of frustration to their owner.


But godliness with contentment is great gain.

- 1 Timothy 6:6



Father, please grant me contentment in my "great gain" that I can have a heart to fully embrace the body you have given me and glorify you with it, just as I am.

Living With Chronic Pain

I've shared many portions of my story here in the past. Today I shared more details about both my struggle with Chronic Fatigue Syndrome and our a bit of the background of our infertility journey over on my InfertilityMom blog.

Do you live with chronic pain? Please share your story. How may I pray for you?

Or maybe your pain isn't physical, but that of a heart crushed by grief instead? If you are a parent (or know one) who has lost a child, please visit my Heaven Born links for several healing give-aways today.

Need Your Help for My Next Book

As some of you may know I have been "in the early stages" of writing a book on the life of Paul, specifically his "thorn in the flesh" for the past few years. It is to be an encouraging resource for living with chronic pain and illness. I've been reading, researching, jotting notes, gathering ideas, but for a very long time now it's been only that, a collection of thoughts and ideas that did very little to resemble any attempt at an actual book manuscript. I've been anxious to move forward, but felt over and over that God was telling me to wait. And so I have.

I still don't know how soon, or how far I will make progress, but over the past few weeks I've seen God very gently start taking my random collection of concepts and begin the thrilling process of shaping them into the skeleton of a book outline. I'm hesitant to say I'm actually "writing a book" yet because it's still very early in the process, but I am encouraged that ideas are starting to be pulled together in some semblance of order and I'm hopeful that there may really be a manuscript at the end of this process.

As I wrote Hannah's Hope: Seeking God's Heart in the Midst of Infertility, Miscarriage & Adoption Loss, I ended each chapter with a "Burden Bearers" section, based on the story of the four friends who carried the paralyzed man to Jesus and lower him through the roof for healing, along with the concept that God commands us to bear one another's burdens. It was a short section that gave ideas, instruction and insight to friends, family and loved ones of a couple facing fertility challenges.

I would like to do a similar thing with this new book and base chapter closings on various characters who touched Paul's life, men like Timothy, Barnabas and so forth. I would spotlight one "hero" per chapter and look at things that person can teach us about encouraging someone through their thorns.

So here's what I need from you. Please let me know what you would call such sections? I don't want to reuse "Burden Bearer" for this is a new book with a new goal and while I'm copying the concept, I feel like the sections themselves need a unique title. I've played with ideas like "Fellow Travels," "Helping Heroes," "Heroes of Hope" and others, but so far nothing really feels like the right fit. A couple of recurrent themes I plan to use through the book are blindness v/s light/sight (with a different twist than you might expect) and gardening/harvesting v/s thorns/weeds. I'm tossing that out there in case either of these topics help point to a section title idea.

I would also like to start doing monthly testimony spotlights here, spotlighting the lives of people who have touched or influenced my life, sometimes directly, sometimes just in passing by learning of their ministries on the Internet or the personal difference they made in the life of one friend. These are people who are real and flawed and living out daily struggles, but finding joy, Harvesting Hope™ in the midst of the journey. I will probably use the same title for those spotlights as I will use in the working copy of a manuscript (realizing that these section titles will be open to alternative titling by my publisher when the manuscript is reviewed by them).

Please share your suggestions. If you submit one between now and the end of April and I end up selecting it as my blog/section title, I've got a small gift I would like to send your way, so please leave me a valid email address so I can contact you for mailing information if I select you title!

Thin Places

Mary DeMuth recently sent me a copy of her new book, Thin Places. I knew it was a memoir, but beyond that really had no idea what to expect. So far I've only been able to steal away enough moments to read the introduction and already I'm enthralled. Mary describes thin places as "those times where the division between this world and the eternal fades; snatches of holy ground, tucked into the corners of our world, where we might just catch a glimpse of eternity." Check back here in the coming weeks (or maybe months - I'm a very slow reader) as I'm sure I'll have more to share about the book later.

In the meantime, I received an interesting invitation this week, asking me to share with you my own "thin place" story, a time when God burst through my life to remind me of His presence or reassure me of His reality. The story was to be exactly 259 words long. If you know my writing, you probably know that limited word counts are the hardest writing challenges for me!

Why such a specific word count? This is the retail price of a new Kindle, the contest prize for the winning essay submitted. Please join me for your chance to win a Kindle by sharing your thin place story too! (Head on over to http://www.blogtourspot.com/2010/02/thin-places-blog-tour/ for details.)

This story describing my journey in the spring/summer of 1994, started out at over 500 words. Even then I felt like I was leaving out important details, but I finally got it down to the exact 259. So here we go...

“I should drive across the median. I've failed at everything. They would be better off without me.” These mocking thoughts no longer frightened me.

My health failed first. I dropped out of school. Our business tottered on the bring of bankruptcy. Yet none of these were my greatest disappointment.

Two years of yearning for the fulfillment of dreams I had carried since my earliest memories left me disillusioned. “Lord, we are serving you in every way we know how. Don't you promise the desires of our hearts?”

I flung my Bible across the room. Remorseful, I ran to find it open to 1 Samuel.

“Not funny, Lord!” I hated Hannah's story. How could He put her through years of waiting, only to bless her with a child, then take back the thing she most longed for?

I sat down to read it again, to prove to God how cruel He was. What, God never demanded Samuel of Hannah? She gave him of her own free will?

Heaven broke through the hardness of my heart, not with an audible voice, yet with words that rang loud and true, “My child, you cannot treat me according to the gifts I choose to give or withhold. I AM worthy!”

I offered works in hopes of blessing. He wanted praise for the sake of love.

We lost our business. I never earned my degree. It was five more years before we held a living miracle in our arms. But I never fantasized about driving my car into another again.

Do You Want to Celebrate?

Ministry.
Servanthood.
What My Friends/Church Did Right...

All of these seemed possible titles for this post, but "celebration" seems most fitting.

I was sitting alone in the back row at church yesterday. I had made it, but just. I came in using my wheelchair as a walker, thankful to have gotten out the door with three kids while hubby was out of town, but wondering what I was doing there. I had forgotten my Bible, and my glasses, and was so exhausted I wondered if I could stay sitting upright through the sermon.

The service began to draw to its conclusion and members of the Family were invited to slip quietly to the back and enjoy communion during the worship music. I was physically close the communion area and wanted to go, but just didn't have it in me, didn't want to invite attention with my chair, couldn't find the strength.

And then a gentle tap on my shoulder. A whispered invitation, "Do you want to celebrate communion? May I bring you the elements?"

It may have been a small act on his part, but to me it was huge. My eyes instantly welled with tears. God sees. He knows. He cares. And He prompts others to take the risk to be His hands and feet when my own are too weak.

Thank you, Father, for the invitation to celebrate You!

New Discovery Offers Hope for Chronic Fatigue Syndrome (CFS)

Today's announcement of the discovery of the XMRV retrovirus' link to to a debilitating neuroimmune disease that affects more than one million people in the United States, Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS), is of particular personal signifcance to me, offering such hope for answers and eventual development of reliable treatment for those of us living with neuro-immune illnesses like CFS.

I will be posting more on my own involvement with this research study and why I am so excited on my personal blog in coming days (today has been a very bad day for me physcially, and I'm just not up to posting much at the moment) but in the meantime, please find out more about this amazing breakthrough research at http://www.wpinstitute.org/xmrv/index.html and be sure to read through the excelent FAQs they have posted for you there on the Whittemore Peterson Institute website.

Edited Oct. 10 to add link to my ongoing thoughts processing this news.

Other links related to this research:
NIH press release

http://www.stuff.co.nz/life-style/wellbeing/2948457/Virus-isolated-in-chronic-fatigue-sufferers

More links to come...

Radio Link & Coping with Crisis of Top of Chronic, part 2

I just got off the phone from a wonderful radio chat with Lisa Copen, as one of 20 seakers for the free National Chronic Invisible Illness Awareness Week virtual conference. This was my second year to experience the blessing of sharing for NCIIAW - feel free to listen to last year's program on infertility, medications, chronic illness and the desire for motherhood at http://harvestinghope.blogspot.com/2008/09/blog-talk-radio.html

This year we were talking about Coping With Crisis on Top of Chronic. I had the chance to share the first half of my notes for today's talk back in August and wanted to post a few more points here today. If you haven't had a chance to listen yet, please take an hour to join Lisa and I at today's archived show:
http://www.blogtalkradio.com/invisibleillnessconf/2009/09/15/Coping-with-Crises-on-Top-of-Chronic--Chat-with-2-Gals-Who-Understand
(Note to listeners who are currently facing infertility, Lisa and I are both after-infertility moms, her through adotpion, I through childbirth, and there are some references to motherhood, including the final caller who asked about deciding to have a second child while facing chronic illness.)


As HarvestingHope.blogspot.com was the only website address that was given out during today's radio interview, I also wanted to direct you to my sidebar where you will find links to several of my other websites and/or blogs. A few to highlight are:

Hannah's Hope is my book website where you can read a free chapter of Hannah's Hope: Seeking God's Heart in the Midst of Infertility, Miscarriage & Adoption Loss and learn about other infertility and loss support resources.

InfertilityMom.blogspot.com is pretty much my "everything" page and certainly my most personal blog. It's a slice of just about everything in my life from reflections on infertiltiy and loss, to the joy of motherhood after infertility. I talk about homeschooling, and writing, and work from home businesses. Here I share more details about my personal health journey in ongoing journal format, in contrast to the more devotional and slightly one-step-back from my ongoing personal struggles that tend to be more reflected here at Harvesting Hope™. And I love to toss in some "just for fun" stuff there, like the latest contest I'm entering or occassional give-aways from me. If you want the whole package and get to know the real me with the ins and outs of my daily heartbeat, InfertiltiyMom.blogspot.com is the blog you will want to follow.

Inner Beauty Girlz is the blog I referenced on today's radio show when talking about finding a passion. It started as a little place to explore my own curiosity about natural and affordable beauty alternatives and also to journal and reflect on God's call to make myself beautiful in spirit and how I can take things I learn about caring for my body and apply them to my thought life and attitudes.
I am a consultant with both Affordable Mineral Makeup™ and Gurrlie Girl™ Christian Jewelry so I also use this blog to post product information, discounts, specials and give-aways along with my beauty hits, tips, tricks and devotional reflections.

As a quick review, my first three tips for Coping with Crisis or Chronic (click here for detailed explanations of each) were:

1. Quiet Time
- non-optional daily priority, both to refresh body and spirit

2. Laughter is the Best Medicine
- seek joy even in dark seasons, not "Polyanna theology," but "Apostle Paul theology" as found in Philippians 4

3. Support Resources
- it is critical to find, or make for yourself, a support network

Added to these, my other three tools in my survival tool belt are:

4. Find a Passion
- When chronic illness hits, it's like a rug is pulled out from under my feet. Everything I have known and simply accepted is turned upside down. Things I took for granted in the past can no longer be presumed. Skills, abilities, perhaps even joys and interests, are suddenly lost. For example, I used to do counted cross stich constantly, but when CFS hit, I no longer had the strength in my arms to hold and stich, the mental focus to count and properly follow a pattern, nor the ability to focus my eyes on those little squares without triggering a migraine. This may seem like a small loss, but it was something that had meant a lot to me and brought me much pleasure for many years, then suddenly it brought only pain and frustration. Not only did I loose something I had loved, but because of my illness and the need to lay in bed for hours on end, I had much more "time on my hands" than I knew what to do with and what I normally would have turned to as a hobby wasn't even an option.

Part of the grieving process of chronic illness is learning to let go of what I can no longer do. But on the flipside, sometimes I am forced to explore new options I might not otherwise have ever considered, and this can be a blessing. I turned to writing, initially sending long letters to my fiance who lived far away, then I began journaling in earnest, and eventually I began writing articles for publication. Had I not lost my favorite hobby, I might never have ventured onto the internet and found a world of support resources, nor written a book, nor become a blogger.

My health struggles themselves led me to search out healthier alternatives for personal care products such as makeup (since I began having allergic reactions to all the chemically based brands I tried, even "hypo-allergenic" lines) and that led me into a whole new nitch of writing on beauty, along with leading me to become a consultant with companies I found to fit my needs. So while I'm too sick to work outside the home, the hobbies that my health unfolded before me have become a small source of "egg money" income that allow me to occassionally help out with a few little extras for our family budget and I find fulfillment in pursuing my new passions in the process.



5. Be Gentle with Myself
- Others may not be, so I need to be! There will always be those who don't understand, but I am the one who lives moment-by-moment with the ebb and flow of my body's demands. I can get caught up in all the "shoulds" that other people put on me, or I can be honest with myself about my needs and abilities and give myself some room to simply "be".

In my case, my doctor has made it very clear that if I push myself as hard as I can just because I have something left to give, that my body will never fully heal. I have always had a very driven personality and want to go and do and give. But if I cannot give myself permission to make my own needs a priority, I'm headed for permant disability and continued decline that will not be able to be reversed.

Putting this concept into practice can be more painful than I wish it were. For instance, I have a heart for anyone who may be lonely or hurting. When a new woman joined church recently, she commented that she had not been able to really establish friendships at her last church, so it became personal to me to see that she felt welcome and found a sense of community quickly. She readily accepted my invitation to come over with her kids for the afternoon, though I had to postpone it several weeks due to ongoing health issues. She then exchanged the invitation and generously watched my kids for several hours while I went to the hospital to be with my parents for my mom's surgery. Since then I've not only been involved with my mom's recovery, starting a new homeschooling year with my kids, but have had a lot of medical procedures, appointments and endless medical phone calls to keep up with, including a trip out of state to see the only specalist my insurance would cover.

I simply find myself too exhausted to reach out right now. She's left the ball in my court with "call me if you want to connect," and my heart aches that she may feel like I don't want to befriend her, when the truth is that I would like nothing more, but simply have nothing to give right now. I have vaguely explained my health to her and will do my best to explain my heart and my physcial reality in more detail soon (hard topics to plunge deeply into with a brand new friend), but in the end I will simply have to accept my limitations and realize that we will have to "do friendship" on the terms by body sets forth for us, and I'll have to be OK with that reguardless of how understanding she may or may not turn out to be.



6. Let Go and Let God
- All of the above tools ultimately point to one simple fact. I can't do it all! I must let go of unrealistic expectations of myself (and of others - it's easy to become disillusioned when others I depend on or place my hopes in fall short of my expectiations) and look fully to God as not only the source of my strength, but the one who gives wisdom and directs my steps moment by moment.

He never has unrealist expecations of me. He is always gentle with me and knows, truly understands, what I face moment by moment.

My job is simply to do what He calls me to for this moment and leave the rest to Him. Some days that may simply be getting through the day without giving into utter despair that I can't raise my arms with enough strength to brush my hair. Some days that may be trusting him that if my new friend needs friendship that I'm not equiped to give, that maybe I'm instread called to pray that God will meet that need for her through someone else.

When recently undergoing some very frightening treatments that had me reflecting on my own mortality, I realized that I was not really handing the reighns of my life to God. I had written love letters to every family member and placed them in my journal where I thought they would be found if I should die. I was peaceful about the prospect of death for my own sake, but I was a ball of nerves for the sake of my husband and children, grieving for them about what they might endure should I die. And then it occured to me of how arrogant I was being, to say I could trust God with my eternal future, but then actively distrust Him to have a perfect plan for my husband and children!

Just simply realizing that a God big enough to hold my eternity in His hands would have a great plan for my family too was a significant "letting go" moment that marked a wonderful return to a peaceful heart for me. As it turned out, I was His ongoing plan for my family and I had let myself get all worked up for something that never was really even an issue, but I pray that I will hold onto that life lesson next time I'm tempted to try to micro-manage God's plan rather than just resting in Him that He will take care of every need, big or small.



I would encourage you to take advantage of any or all of the 20 Invisible Illness Week seminars available to you this week, and archived for ongoing listening, at http://www.blogtalkradio.com/invisibleillnessconf. Please log back in here at www.HarvestingHope.blogspot.com again on Saturday as well, for a special post on Hope in the Shadows as part of the (In)Courage blog tour.

National Invisibile Chronic Illness Awareness Week

I will be presenting at noon (Pacific) this Tuesday, on the topic of Coping with Crisis on Top of Chronic...

SBWIRE – SEPT 14, 2009 / Nearly 1 in 2 people in the USA live with a chronic illness and about 96% of these illnesses are invisible.* Rest Ministries, Inc., the largest Christian organization that serves the chronically ill, and an affiliate of Joni Eareckson Tada’s International Disability Ministry, is encouraging those with illness, friends, family, caregivers, and churches to get involved in their annual outreach, National Invisible Chronic Illness Awareness Week, September 14-20, 2009.

In addition to churches having outreach events for those with chronic conditions, Rest Ministries organizes a 5-day free virtual conference with 20 seminars that can be attended via one’s computer and computer speakers. Seminars are on a variety of topics including marriage, parenting, starting a business, how to apply for disability and more—all when you live with a chronic illness. The seminars are held via Blog Talk Radio and listeners can call in through their phone line with questions.

Well known Christian authors who will be presenting include:

• Bill and Pam Farrel, best-selling authors; The Marriage Code (Harvest House, 2009)
• Naomi Kingery, author of Sugar Free Me (Xulon Press, 2008)
• Dena Dyer, author of Mothers of the Bible (Barbour Publishing, 2009)
• Georgia Shaffer, author of How Not to Date a Loser (Harvest House, 2008)
• Joanna Faillace, Certified Biblical Health Coach an author of Super-Naturally Healthy Families Cookbook Devotional
• Lisa Copen, author of Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend (Rest Publishers, 2008)
• Maureen Pratt, author of Peace in the Storm: Meditations on Chronic Pain & Illness (Galilee Trade, 2005)
• Jennifer Saake, author of Hannah’s Hope: Seeking God’s Heart in the Midst of Infertility, Miscarriage and Adoption Loss (NavPress, 2005)
• Marcia Ramsland, author of Simplify Your Life (Thomas Nelson, 2004)
• Jolene Philo, author of A Different Dream for My Child (Discovery House Publishers 2009)

Lisa Copen, 40, founder of Rest Ministries says, “Many Christians may have a solid walk with the Lord, but the emotional rollercoaster of a chronic illness and its constant progression can leave them feeling alone and misunderstood. They are hanging on by a thread and being told they look fine and should just make themselves get up and go to church only adds to the isolation and bitterness of others ‘not getting it.’ The emotional scars can be harder to cope with than the actual illness.”

Copen, who has lived with rheumatoid arthritis and fibromyalgia since the age of twenty-four, ended up in the hospital for a week last fall fighting off the flesh eating bacteria in an ankle wound. We never know what the next day will hold,” she explains. “It is so important that there is good communication between those who are ill and their loved ones, as well as the church body.”

Did Copen’s circle of friends and church come through for her? “It was an enlightening experience,” she says. “Although I teach others to ask for help, I found out how difficult it is. And then when I did ask for help, I experienced what it is like when you fall through the cracks and everyone thinks someone else is providing both the practical support as well as emotional encouragement.”

Rest Ministries extends their outreach about invisible illness awareness to churches, providing materials to start up HopeKeepers groups, books, cards, tracts, etc. About 96% of those with illness may appear perfectly healthy on Sunday mornings, but may struggle to get out of bed the remainder of the week.

Ken Chambers, Director of Church Relations at Joni and Friends International Disability Center, says, “It is vital that Christians understand the emotional and spiritual trials of those with invisible disabilities, as well as those with visible disabilities. I encourage church leaders to take advantage of the wealth of resources at Rest Ministries and to participate in the National Invisible Chronic Illness Awareness Week, which they sponsor annually.”

One can get involved by joining the hundreds of bloggers who are writing about illness in the next few days, by joining the cause on Facebook, and most especially, by tuning in for the conference. All seminars will also be recorded and archived.

See www.invisibleillness.com for more information or www.restministries.org for the sponsor of this event, Rest Ministries.

*Source: Chronic Care in America, U.S. Census Bureau

My dear friend Lisa Copen

I'm happy to once again introduce you to my dear friend Lisa Copen, a great personal encourager to me for many years. She is also the founder of National Invisible Chronic Illness Awareness Week. This year NICIAW is September 14-20, 2009. Lisa is on a blog tour to help increase awareness of the week and its 5-day free virtual conference (where I'll be on of 20 radio guest talking with her throughout that week). There are lots of ways to get involved and since Lisa has so much great information to share with us, we will be spreading out these Q&As over the next few days.

Hi, Lisa. Thanks for connecting with us here today at Hope Harvesters™.

LC: Thank you for the honor of being here. I read a lot of blogs, but recently I've visited more than ever before and I'm amazed at how the quality and quantity of blogs on health and illness matters have grown over the last couple of years. Both the readers and writers of blogs have changed how people perceive different illnesses, because they reveal not just the symptoms of illness, but the daily lives of the people who live with them.

It is wonderful to see the growth in both volume and quality of awareness and support! :) Speaking of awareness, tell us about National Invisible Chronic Illness Awareness Week. That's quite a description.

LC: Yes. Often I refer to it as just Invisible Illness Week or NICIAW. Our mission is to have a designated time, worldwide, in which people who live with chronic illness, those who love them, and organizations are encouraged to educate the general public, churches, health care professionals and government officials about the affects of living with a disease that is not visually apparent. Through programs and resources, we seek to recognize the daily challenges of more than 100 million adults and children who live with invisible illness.

It's also a great chance for people with any illness to be involved in a national event to increase the understanding of their own particular disease. They can use our event to blog about the emotions of living with their illness, for example, how they often may look perfectly fine but are in deep pain.

Why do you feel God has given you such a passion to advocate for the chronically ill, especially those of us with invisible illnesses?

LC: Honestly, I wish I knew. I never would have “chosen” chronic illness ministry—it chose me! And no matter how tired I get or overwhelmed with the business side of the ministry, I know this will be a passion of mine until the day I die. I just see so many people hurting who just want one person to talk to who understands. They just want one pastor to say, “I’m worried about you. How can we help? REALLY?” I see so many who are left by their spouse, abandoned by their children, misunderstood by their dearest friends. It’s so disheartening. The Christian community has a huge opportunity to minister to these people and include chronic illness ministry and outreach into their church alongside divorce recovery or widow ministries, etc. I don’t understand why it’s so hard to break down the resistance except for the fact that no one wants to acknowledge that illness isn’t always healed here on earth.

Explain the idea of a "virtual conference" to us. What's that?

LC: A wonderful opportunity to "attend a conference" without every having to get dressed! The main part of the Invisible Illness Week is our 5-day virtual conference--which is completely free--September 14-18. There are 20 speakers who are experts in their area and with chronic illness they will be giving a 40-minute presentation and then taking live calls. The seminars are M-F, 4 times a day on a variety of topics: going to college, marriage, applying for disability assistance, cleaning, finding the right job, faith, preparing for surgery and many more. All are free, listened to live or later, and even downloaded from itunes to your ipod or purchased on a CD.

That's a great idea! So are last years programs available too?

LC: They are. We used a chat room originally so we had written transcripts, but one can hear 2008's programs can be heard from a computer, itunes, or even purchased on a CD.

I know a lot of us would love to attend a 5-day conference on how to better cope with chronic illness, but because of our illness, traveling, finances, sitting for so long, and other factors, it just isn't possible, so this is perfect.

LC: Isn't it? It's kind of ironic that we began virtual conferences years ago, but now many organizations and companies are making this a trend because of the economy and costs of a real conference.

I'm looking forward to talking with you more tomorrow about exactly what is involved in a "virtual conference" and learning more about your personal story and your heart for all of us facing the daily struggle of invisible and chronic illnesses!

Coping With Crisis on Top of Chronic, part 1

This is "part 1" of a 2-part series of notes for a radio program on Coping with Crises on Top of Chronic; Chat with 2 Gals Who Understand where Lisa Copen and I chatted for National Invisible Chronic Illness Awareness Week. For "part 2" of these notes, follow the link at the end of this message.

A couple of weeks ago I was fighting the first day of a migraine (it ultimately lasted 13 days in spite of medical efforts to subdue it) when I got a phone call from my lab. There had been an issue with my recent blood work and it needed to be redrawn as quickly as possible. I figured I could wait until the headache and accompanying spotty vision abated enough to allow me to safely drive, then I could manage to get myself to the lab that was 10 minutes from home, sometime later in the week. Unfortunately, as the lab tech continued to apprise me of the situation, I realized that the vial that needed to be redrawn was one I had done nearly three weeks earlier at the specialty lab over a windy mountain pass nearly an hour away.

My phone rang at about 11 on a Tuesday morning and I had to have the redraw prior to an IV I would receive that next Sunday. Because of Post-Infectious Chronic Fatigue Syndrome (ME/CFS), my driving ability is limited to about half an hour from home and only on relatively straight roads, even on my best of days. The location of the lab already meant I would have to call in outside help to get it done. Not only would I need help, but I would need to be rather demanding about how and when I received that help because the specialty lab only does these specific draws on Mondays, Tuesdays or Wednesdays before 1 PM. I had to somehow either get myself to the lab within the next two hours that very day, or hit a specific five-hour window the next. If I could not arrange childcare, someone to drive me, and cope with the effects of motion sickness on top of my migraine misery before 1 the following afternoon, I would have to try to reschedule my IVIG therapy for a second time, the treatment we had fought for the past 18 months for insurance approval to be able to begin!

My mom, who was herself dealing with pre-op workups for a knee replacement surgery, helped me figure out a plan for my dad to drive me and three kids up the mountain the following morning and still get back down to town in time for my x-rays at the orthopedic surgeon’s office the next afternoon. I certainly didn't want to miss that appointment and delay my hopes of getting my broken foot out of a cast after 10 weeks of slow healing! Before the week was over, Mom would also end up driving me to my primary care doctor’s office for migraine shots two days in a row. As I tried to juggle all those different medical demands, I joked with my mom that I never knew that being sick could be such hard work!

Do you ever feel like living with a chronic illness is a full-time job? And as if managing your “regular” health challenges isn’t complicated enough, what do you do when a crisis situation comes along on top of the daily juggle of pain, unpredictable symptoms, medical care and the financial strain that can accompany it all? Life doesn't just stop because of illness. Accidents, sorrows, trials and tragedies (as well as joys, victories, accomplishments and achievements) of all proportions still happen around and to us. When just coping with chronic already overwhelms us beyond our limitations, how do we keep from being done in by crisis, the surprise "extras" that come along?

I certainly haven’t figured out all the answers, but after living my entire adult life under the shadow of Chronic Fatigue Immune Dysfunction Syndrome (ME/CFS) and taking some crisis journeys through unemployment, infertility, a few outside medical emergencies such as this broken foot, and several encounters with death, grief and loss, I have learned a handful of coping skills along the way. When crisis hits on top of chronic, here are a few simple survival tips I can fall back on:


1. Quiet Time.
This is a non-optional survival skill for me in daily living with chronic illness. While I might be able to scrape by for a few days without making scheduled downtime a priority, I can’t function on a continual basis without it. In a crisis situation I might be tempted to try to push through on adrenaline for a while, but if don’t make a conscious effort to slow down sooner rather than later, I will pay for it with a significant physical and emotional crash that will be hard to recover from. So while it may feel like there is no time to even catch my breath, in times of crisis I must be aware of my need for regular “time outs”.

There are two ways that I implement this concept in my life. The first is through daily “quiet time” every afternoon in our home. My kids are 9, 6 and 3 and know that every afternoon we will pile into my bed together for story time (sometimes I can barely get through a short, simple picture book that I ask them to read to me while on better days I might be able to read two or three chapters of a novel with them) then everyone will go to their own rooms and sleep or read or play quietly for at least 90 minutes. We have done this since the oldest was a baby. (I encourage moms who are newly trying to implement this technique with older kids who might be resistant to the idea, to start with even just 15 or 20 minutes and work your way up.) On days when I can barely function and wonder how I will ever make it through the day, I know that if I can hang on until quiet time, I will have a chance to recharge at least a bit; on these days quiet time sometimes becomes 2 or 2½ hours rather than just our regular 1½.

On a spiritual level I need daily quiet time as well. God calls me to “Be still, and know that I am God…” (Psalm 46:10). In my weakest moments it might be all I can give to simply lay still and try reflect on who God is, being thankful that He loves me, broken as I am. Other times I can make a more active pursuit of knowing God by spending time reading and meditating upon His Word (my Bible), by praying (simply talking to God) or journaling my thoughts to and about Him. It is only in stilling this most inward part of my soul where I find the greatest refreshment and benefit of quietness and intentional rest. The words of Isaiah 30:15 are so very true; in quietness is where I find my strength.


2. Laughter is the Best Medicine.
Cliché, but true none the less. I can always tell when my husband is feeling stressed, especially over my medical needs, because it is in these times that he most frequently turns to humor to help us through. I cannot even begin to count the times he’s had me giggling with his tongue depressor puppets, or exam glove balloons, or silly comments only the chronically ill could love, as we’ve sat in cold exam rooms waiting for doctors to show up.

Going through fertility treatments I had to get really creative about finding ways to laugh at hormone injections and very invasive testing and treatments. I remember driving across town one day with a sperm sample in my bra (to keep it the correct temperature) and bursting into semi-hysterical laughter at the thought on how on earth I would explain that to an EMT if we were to get in a car accident on the way to the clinic and they would have to cut me out of the wreckage with the Jaws of Life! Sometime laughter is the only way to avoid tears.

Tears and laughter can co-exist as well! Funerals are typically solemn times of amplified grief. But have you ever found those in that inner circle of family and closest friends gathered around together and laughing at funny memories of their loved one’s life? Sometimes laughter comes through tears, but can be just as healing.


3. Support Network.
Did you cringe a little when I was talking about my husband’s playful support at my doctor’s appointments, my dad’s willingness to be both chauffeur and babysitter for my distance blood draw, or what it’s like to be in an “inner circle” of family and friends at a funeral? While I’ve been more blessed than most in this area, I know that support doesn’t typically come easily. We’ve had seasons when we didn’t live near extended family, had few friends, were not involved in a church, and my husband worked 80-90 hours a week. I felt incredibly alone and afraid without anyone to lean on. It was then that I learned just how important it was for me to make the effort to find/create a support network for myself (even when I felt like I have no energy to make that effort)!

Surrounding yourself with support is ideally accomplished before you are faced with a time of crisis, but often seems hard to find. I think this is true because others may not see or truly understand our need for help through the daily grind of chronic. It can be humiliating to ask for help too, even when we are crying out on the inside, “I’m so alone!” When we are faced with crisis, sometimes (not always) support more readily presents itself. When it does, it’s important to take that help offered, though we would all rather be self-reliant enough to not need it.

OK, so you are ready and willing to accept any support you can find, but can’t find any. Now what? Your doctor, hospital, local social services or place or worship are all possible starting places when looking for a support network. I’ve said over and over that I don’t know how people survive without the support of a local church family. Even though I have great family support now, including my parents who moved from out of state just to be near enough to help, I am still thankful for the additional help and encouragement from church friends and local support group members. Being involved in a supportive network also lets me feel like I have something to give back to others, maybe not in helping meet physical needs, but there is hope and purpose simply in sharing my story and showing someone else that she is not alone either.

Another huge advantage we have in the age of the internet is that there are support websites and message boards for just about any issue you can imagine, even those “one-in-a-million” type illnesses. If you can’t find an existing one to meet your needs, there are many free places to create your own online community. When you become a part of an online support network, you may not find someone in your own backyard who will be there to drive you to your next doctor’s appointment (but then again, you may make just such a connection!) but you probably will find many others who personally understand the fears and frustrations of your challenge, be it chronic or the crisis variety. I participate in several online support networks such as Rest Ministries (support for any form of chronic pain/illness), Hannah's Prayer (infertility and pregnancy/infant death support), and many disease-specific forums.



I realize these are only three small places to start the coping process, but this post is already getting quite long, so I’ll save my next three tips for another day. If you want a few more ideas right now, check out Finding Courage in Crisis, an interesting article I ran across earlier this month. I'm always looking for new coping concepts to tuck away for times of need. So how do you cope with chronic, with crisis, or with crisis on top of chronic? I really would love to hear what you have to share!!!


For more on this topic, join Lisa Copen and I as we talk (yes, in our real voices) during the National Invisible Chronic Illness Awareness Week Virtual Conference on September 15. Between the two of us, Lisa and I have survived 45 years of multiple chronic illnesses including Fibromyalgia, Chronic Fatigue Immune Dysfunction Syndrome (ME/CFS), Rheumatoid Arthritis (RA), Diabetes, Endometriosis, Polycystic Ovarian Syndrome (PCOS/PCOD), infertility, chemical sensitivities and more. We know that life doesn't stop just because we are in pain. Hear our radio chat as we share our hearts and experiences through surgeries, infections, IV therapies, broken bones, unemployment, adoption journeys, and grief ranging from miscarriages to the deaths of grandparents. We will talk about survival skills for coping the stress of everyday life when crisis hits and we'll look forward to chatting with you as you call in your own crisis on top of chronic stories too.

Go to HarvestingHope.blogspot.com/2009/09/crisis-chronic-2.html for "part two" of these notes or listen to the radio program at http://www.blogtalkradio.com/invisibleillnessconf/2009/09/15/Coping-with-Crises-on-Top-of-Chronic--Chat-with-2-Gals-Who-Understand.

Will You Help Me Dance? (Chronic Fatigue Syndrome)

I've lived with a serious, disabling and chronic neuro immune illness called Chronic Fatigue Syndrome (CFS) for the past 19 years. This illness goes by many names including Post-Infectious Chronic Fatigue Syndrome, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) and in the past was known as chronic Epstein-Barr virus (CEBV). You can find out more and learn the answers to questions such as, "What is ME/CFS?" or "Is it contagious?" by visiting the FAQs at the Whittemore Peterson Institute's website.

The Whittemore Peterson Institute is working hard to find both the root cause, as well as a potential cure, for CFS. They are a wonderful, compassionate group of researchers who have given me more hope in the fight against this illness than I have ever had. To help them keep moving forward, I would love to be able to purchase two tickets to their fundraising event, I Hope You Dance, on Sept. 12, 2009. I cannot afford these tickets on my own, but am asking my friends to consider chipping in to help me out.



Fundraiser tickets are $250 each. I would love to be able to purchase two, one for myself and one for my husband, so that we can attend this event and learn more about the ongoing strides at WPI. I'm asking you to consider helping me earn my way this benefit with your donation of even a dollar or two. For each person who helps me out with $5 or more, I will enter your name/email into a drawing for $30 in free products from Affordable Mineral Makeup™. If you can send me $10 or more, I will enter your name/email in a drawing for a Flower Bead Set necklace and bracelet from Gurrlie Girl ($68 value; or you may specify that you would prefer 2 entries into the makeup give-away if you would prefer). Any gift of $20 or more will get you entered into both drawings!

Whatever I can collect from this little drive will be donated to the Whittemore Peterson Institute even if I don't reach my ticket purchase goal, so ever little bit helps!!! Today it's a struggle even to walk, sometimes I'm in a wheelchair or simply in bed. Riding a bike just to the end of my block is no longer an option. Swimming is too much for me. Climbing a flight of stairs is overwhelming and leaves me breathless, wobbly and in pain. But I have hope that someday I will have a body that functions as it should again, and then I will be able to dance! Will you help me?

How protective are you of your medical information?

I struggle with how much of my story to share. With infertility I was ultra-transparent. With other chronic illness, I don't feel quite so inclined to spill "the good, the bad and the ugly," at least not all the time. I'm a huge believer in peer support, that it is critically important to the mental and emotional well-being of someone living with chronic pain/illness to know we are not alone. And how will we connect if we aren't open about the issues?
And yet there's just something daunting about having my medical history plastered all over the internet. Some days I feel very open and "tell all" while other days I worry about the reality that once something is posted on the internet, there's really no "taking it back," or realing in the potential long-term impact of revealing the reality of my struggles.
I know I post more than most, and usually I'm OK with that, but other days I stop and wonder if being so transparent is really the wisest of ideas? I certainly hold back more than I share because of that nagging sence of the unknown impact of the internet. Today's a day I feel overwhelmed and want to just spill it all out, but do I really want my great=grandchildren (or yours?) being able to access today's struggles generations from now? I just don't know! *sigh* Maybe I'll create a password protected blog where I can share all, yet not allow universal access to my thoughts???
How about you? Are you a tell-all kind of guy/gal when it comes to your health, or do you guard your information as private? I really can see both sides of the fence!

P.S. I'm on day 4 of a migraine I thought was resolving yesterday but was back with a vengance at 4am. I'm fighting for everything I'm worth to keep from throwing up because I'm afraid that once that part starts, it won't stop easily! (I've been continually nausious for about 5 weeks now with ongoing digestive issues, but this is a new migraine-related layer of nausia on top of the pre-existant virus or whatever it is I already had going on.) I had a 45 minute drive up curvy mountain roads (well ride actually, as I can't drive myself that far) for blood draws yesterday morning, followed by an hour back down the mountain and stopping at another doctor's office for follow-up x-rays on my foot. Today I see my primary care doctor to talk about the new medication that was called into my pharmacy yesterday that I'm not even sure what it's for, and Sunday I start IVIG treatments with my first IV anticipated to take 4-5 hours to administer and weekly infusions for the next 12 weeks. So there it is, today is a "spill it" day afterall.

P.P.S. I have not forgotten about the book give-away for Rain on Me, just haven't had a chance to select a winner yet. There were so many heartbreaking stories represented by your posts and I am praying for you each!

Just in Case You Wonder...

Yes, I have bad days too! I know it can be overwhelming sometimes to read messages of exhortation like the one I just wrote on thorns, because it is easy to feel like, "Is this author for real?"

Let me assure you, yes, I get it. No, I don't go around jumping up and down every minute (not that I can jump much anyway!) saying, "Praise the Lord, I feel so sick today!" I'm physically not doing well at all right now, and while I try to keep God's purpose in the forefront of my mind, like it was the day I wrote the thorns message, I have very down days too, where the unrelenting physical attack wears away at the spirit and the emotions as well.

I'm not saying this to try to get sympathy, just to let you know that while this blog is about Harvesting Hope from Heartache, I understand that some seasons are much harder to "harvest" in than others. If that's where you are right now, please know you are in my prayers and take with you this {{{gentle hug}}}.

Given a Thorn

If the following post is just a little too "up" and hard for you to digest right now, check out Just In Case You Wonder... to see that I'm for real and understand about those down days too! {{{hugs}}}


I love gardening, but I usually find myself starting to loose the battle against weeds by early May, and by July my garden is overrun simply because I don't have the energy or stamina to get out there and fight them, especially as temperatures climb and I wilt, just like my unwatered flowers, in the heat. I don't know that this year will be any different, but I can dream of a beautiful rose garden, can't I?

So with high hopes of a different outcome this year, I set out to do my gardening thing this morning while those weeds are still young and tender and the air is cool. Things went along well for the first few minutes, until suddenly I felt this irritating sensation in my hand every time I moved it or tried to grasp something.

The pain wasn't debilitating, just "there" enough to keep me from being able to pull weeds properly or make much headway in my battle. At first I tried to ignore it and keep pushing through, but the more I tried to go on with my work in spite of the pain, the more "stabbing" the sensation grew. What was wrong? Nothing obvious, so I tried different ways of grasping those weeds without using my thumb and discovered that an opposable digit really is necessary for weeding!

On very close inspection I discovered the tiniest of thorns, just barely visible, poking out of the pad of my thumb. It looked so small that it seemed I should be able to simply brush or even blow it away without consequence. But the more I tried to get rid of it, the deeper I drove it into my own flesh and the more irritated my hand became.

I went for the tweezers but just couldn't get a good grasp on it. By very nature of it's minuet size, that thorn became more problematic to remove than a big splinter would have been. That speck on my thumb ultimately put a halt to my gardening for the rest of the day.

After favoring this hand all day long I've finally realized that I will probably have to wait for it to fester before I can work that irritating little thorn out of there. How could something so seemingly insignificant cause me to have to change my plans not only in gardening but in several other normal, daily tasks today too? The whole experience has left me reflecting on what it is like to live with the progression of little, daily, ongoing losses in chronic illness.

Yes, of course a thorn so tiny that it can't be grasp with tweezers may seem trite in relation to significant health issues! But might not some of the same general principles apply?

Before I first got sick, I set out with a goal, my college degree ahead of me. That first week when everyone else on campus was sick too, I didn't give my illness much more thought than I did that first irritating little thorn poke this morning. But as my fellow-students began returning to class and my fevers and nausea and memory lapses and debilitating fatigue dragged on for weeks on end, I began to see this was not something I could just keep pushing through and went home to sleep through three weeks of Christmas vacation.

Unlike my gardening today, I actually tried to return to the task at hand as I attempted a second semester at school. Within 36 hours back in the dorm I was as sick as I had ever been prior to those weeks of mom's home-cooked meals and pampering. This began my "grasping at straws" (or should I say, "grasping at thorns"?) stage of the journey, months of desperately seeking medical answers and trying every "sure cure" that was offered to me. Just like trying to remove the thorn caused greater irritation to my thumb, many of the things I tried in hopes of regaining my health actually exacerbated the situation and caused further decline.

A diagnosis finally came in the midst of that grasping stage. Just as finding that tiny thorn in my thumb answered some questions about why I was experiencing the pain I felt, I was relieved to have a name for my illness as well. But that relief was short-lived as I moved from grasping to festering with boiling anger as the realities of such a diagnosis sank in. I was not only fighting my illness but the heart-infection of bitterness as I raged against a broken body, broken dreams, and the loss of my any illusions I had of being in control.

I had to fester for a long time before I could reach the acceptance stage. Here I realized I was going to need to alter my life significantly around my "thorn" and learn to live with it for as long as it took to work it’s way out (in this case, maybe the rest of my lifetime). I had to develop a new definition of "normal" daily life, accepting that this form of "normal" could vary dramatically from day to day or sometimes even from moment to moment. Just as in gardening the simple task of grasping a weed was unexpected hindered by pain shooting through my thumb, my new normal with chronic illness sometimes includes feeling "fine" as I step out the door to get the mail, only to find myself unprepared for the exhausting effort of trying to walk back up the driveway.

When my husband came home from work tonight he immediately noticed three long scratches across the back of my hand, the result of carelessly brushing up against a rose bush this morning. But he didn't notice that little thorn in my thumb until I took the time and seemingly silly effort to point it out to him. Strangely enough, though they look ugly, those scratches don't hurt much, hardly even bother me at all. It's that unseen thorn that causes me to alter the very way I usually do things. Just as in illness, often the obvious struggles are easier to cope with than the unseen conditions that cause others to wonder why I claim to be sick or can be unreliable to fulfilling my commitments when I look so healthy.

In the book of 2 Corinthians, chapter 12, the apostle Paul writes:

7To keep me from becoming conceited because of these surpassingly great revelations, there was given me a thorn in my flesh, a messenger of Satan, to torment me. 8Three times I pleaded with the Lord to take it away from me. 9But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. 10That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.

- NIV

I don’t know all the reasons why God has allowed my “thorn in the flesh”. Is it to keep me from becoming conceited? Possibly so, for I know illness has certainly humbled me and helped me to realize that God is God and I am not!
Is it a “messenger of Satan” intended to torment me? Only God knows for sure why He allows any kinds of trials in my life, but I am comforted by the book of Job to see that if satan has been allowed to bring any pain into my life, that his influence must be filtered and tempered through Heaven first. He can only touch me as far as God allows and his powers are limited by God's strict parameters. Like Job, I can only see a terribly small sliver of what is actually happening in our world as influenced by the spiritual realms, but I do know that God is the one ultimately in control!

So as for the source of my "thorn" I can say with confidence that I know that God has the power to prevent these trials, but in His great wisdom He has chosen to allow them in my life (be it directly through satan or simply as a natural by-product of this broken, fallen world) for some perfect reason. Because I cannot see the big picture from His perspective, instead I must cling to His promise that His grace is enough and accept that His power can shine most fully through me when I yield my heart to His plans. Therefore, I will boast gladly in my weakness and thank Him for the power that He gives me for every step He enables me to take, every breath He blesses me to draw.

James chapter 1 says,

2Consider it pure joy, my brothers, whenever you face trials of many kinds, 3because you know that the testing of your faith develops perseverance. 4Perseverance must finish its work so that you may be mature and complete, not lacking anything.

I don’t know that I can honestly say I “delight” in my weaknesses quite yet, though I am beginning to see that if it was "given" to me, then I can choose to accept it as a "gift" and look for joy even in the midst of struggle and pain. A bit later in that James passage we read,

17Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.

Even though my physical condition is ever changing, I can cling to my unchanging God! I pray that He will refine and mature me through this process so that others will see Christ’s strength in and through me even if they fail to understand about my thorns.


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The theme of the May Christians with Chronic Illness Blog Carnival is "Coping with Loss". What is something you miss since you have had your chronic illness/pain? How have you been able to adjust and accept the fact you can no longer do “it”? What new hobbies or activities have you found you enjoy that somewhat replace what you lost? What has your family missed concerning your illness and how have you found a way to change the way you do things so you can still participate in family activities? Read additional articles from theis Carnival at http://chronicillnesssupport.wordpress.com/2009/05/15/christians-with-chronic-illness-blog-carnival-2

Submit your ideas for the June carnival at ChristiansWithIllnessBlogCarnival.com by June 5 to have your post considered for next month's carnival selections. Next month's topic is anything related to children while living with chronic illness, such as keeping them busy over the summer, the grief of not being able to have kids (or maybe choosing not to due to illness), the stress of keeping up with kids, etc.

Asking for Prayer

I have a chronic illness that stems back to a virus I had as a child and the acute onset of additional complications my freshman year of college. I've lived my entire adult life battling pain and debilitating fatigue and a range of other symptoms, but some seasons are better than others. At my worst I spent 2 years nearly entirely bedridden, so I am very thankful for every day I can get out of bed and function at a reasonably normal level.
Having said that, I am going through a pretty rough season right now and could use some extra encouragement and prayers. I am seeing a wonderful doctor (one of the world's leading specalists in his field!) and am receiving the most in depth care I've had in 20 years. I am very thankful!
But my current treatments are taking a toll on me and I'm struggling physically at a level I haven't faced on a daily basis in several years. My doctor had warned me that this 6 weeks of treatment could make me feel a lot worse before I started seeing any benefits, and for the first 2 weeks I thought I had gotten off pretty easily. But the harder parts hit with vengance a few days ago and I know I still have 3 1/2 weeks ahead of me for this particular treatment.

Thank you for your prayers. I am striving to "Be joyful in hope, patient in affliction, faithful in prayer" (Romans 12:12). These struggles, while seemingly all-consuming to me in the midst of them, are truly "light and momentary" (2 Corinthians 4:17) in the grand scope of eternity and even God's plan for my life here and now! Even so, I can so easily loose sight of God's grace and mercy and start down the path of self-pitty when I know that choosing joy is the better path on all counts! So your prayers are a blessing and I humbly ask you to uphold me before the Lord at this time, yes, for physical endurance and even healing if it is the Lord's good pleasure to grant this blessing. But most of all I ask your prayers that my heart would remain right before Him in the midst of this current struggle and that I would continue feeding on the joy of the Lord.

When All is Stripped Away

The following blog entry was first written last April for my Inner Beauty Girlz blog. If you are struggling with things you wish you could accomplish but running up against limitations, I pray that it will be a blessing to you today. I thought to repost it because I have been feeling much of the same discouragement lately and after reading The Crippled Lamb to my daughter as I tucked her in for bed tonight, I was once again encouraged. That story never fails to uplift me!

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Sitting in church a couple of weeks ago I was simply too tired to stand for the singing time. This isn't at all uncommon - I sit through music time more often than I'm able to stand. (There were years when I rarely could leave the house to attend church at all, so just being able to be there is HUGE!) But as I am sitting I am usually singing and Signing (Sign Language) and stiving to give my whole heart over to worship.

Unfortunately, I started having asthma attacks about 3 years ago and I've found singing to be a frequent trigger. So on weeks when I can't sing either, I grab my inhailer, stop the asthma attack in its tracks, and consentrate on joining in musical worship through Sign. Recently I've found my arms to "heavy" and the pain too instense even to Sign consistantly. So a couple of weeks ago I sat there in church feeling very dejected and asking the Lord what I had left to give. How I could participate in corporate worship when I had nothing left to offer, no strenght to stand, no breath to sing, no ability to even lift my hands in praise?

Though not the song being sung that morning, He immediately reminded me of the words of Matt Redman's song, "The Heart of Worship" (view on uTube link below). A few of the lines are:

When the music fades, all is stripped away, and I simply come
Longing just to bring something that’s of worth that will bless your heart...
I’m coming back to the heart of worship, and it’s all about You, Jesus...

What a great reminder that everything else is external (physical strength, the gifts of voice and hands, every breath I draw) but true worship, like true beauty, is internal. When everything else is stripped away, I am still of worth, I can still be whole, because of who Jesus Christ is. He is worthy of all I am, all I have to offer, even when my offerings are meager.

"The sacrifices of God are a broken spirit; a broken and contrite heart, O God, you will not despise." Psalm 51:17 (NIV)

If you or someone you love is struggling with health issues, check out Rest Ministries, a wonderful organization providing support and encourgement in the face of any and every kind of chronic health challenge. This group was started by a friend of mine and has grown into an international ministry offering local support group chapters, a print magazine and many forms of online support including daily email devotionals, message bords and much more.



(If you are reading this via email and can't view the video, be sure to drop by the Hope Harvesters™ Blog to see this beautiful video for yourself.)


"My flesh and my heart may fail,
but God is the strength of my heart
and my portion forever."
- Psalm 73:26 (New International Version)

Infertility and Illness Radio Link

I've been talking about National Invisible Chronic Illness Awareness Week since my very first post here. Well, NICIAW is finally upon us and I had the joy of talking about Medication, Illness, Fertility and the Desire for Motherhood with Rest Ministries founder, Lisa Copen this afternoon. If you missed the live broadcase, please turn in to the archived program at www.blogtalkradio.com/invisibleillnessconf/2008/09/09/Medications-Illness-Fertility-and-the-Desire-for-Motherhood.

Blog Talk Radio

Tomorrow at noon (Pacific) I’ll be sharing a Blog Talk Radio broadcast about Illness, Medications, Fertility and the Desire for Motherhood as part of National Invisible Chronic Illness Awareness Week. Infertility is an invisble illness that, like many other chronic illnesses, is often misunderstood. When you live with both infertility and other chronic health challenges too, life can get really complicated! Tune in on Tuesday and let me share a bit of my own story, then call in and share your throughs and questions about growing a family while facing chronic illness.

In the midst of all the physical challenges of both infertility and Chronic Fatigue Syndrome, the spiritual journey was even more intense for me. I wrestled with God, struggling and asking and demanding and pleading with him to remove the pain both in my body and in my heart. Like Paul with his “thorn in the flesh” I repeatedly “pleaded with the Lord to take it away from me…” I wanted nothing more than to be a mother and I couldn't understand why that joy came so easily to all my friends while I soaked my pillow with tears month after month. David’s words resounded with me, “I am weary with my groaning; all the night make I my bed to swim; I water my couch with my tears” (Psalm 6:6).

I sunk into deep depression, even contemplating suicide. It seemed so unfair that nothing in my body would work as it was designed. If I couldn't even acquire something as basic and natural of pregnancy, I just couldn't see any use God could have for a woman like me. Job’s words captured my despair perfectly, “I prefer strangling and death, rather than this body of mine. I despise my life; I would not live forever. Let me alone; my days have no meaning” (Job 7:15-16, NIV).

Desperate words? You bet! I was a desperate woman. But by God’s grace, and through a long, slow processes of healing my heart, He did not leave me to my own desperation. “He lifted me out of the slimy pit, out of the mud and mire; He set my feet on a rock and gave me a firm place to stand” (Psalm 4:2, NIV). I wanted healing, instead He chose to say, “My grace is sufficient for you, for my power is made perfect in weakness” (2 Cor. 12:9). Come join us on Blog Talk Radio and find hope in the midst of your heartache too!