Thursday, August 6, 2009

How protective are you of your medical information?

I struggle with how much of my story to share. With infertility I was ultra-transparent. With other chronic illness, I don't feel quite so inclined to spill "the good, the bad and the ugly," at least not all the time. I'm a huge believer in peer support, that it is critically important to the mental and emotional well-being of someone living with chronic pain/illness to know we are not alone. And how will we connect if we aren't open about the issues?
And yet there's just something daunting about having my medical history plastered all over the internet. Some days I feel very open and "tell all" while other days I worry about the reality that once something is posted on the internet, there's really no "taking it back," or realing in the potential long-term impact of revealing the reality of my struggles.
I know I post more than most, and usually I'm OK with that, but other days I stop and wonder if being so transparent is really the wisest of ideas? I certainly hold back more than I share because of that nagging sence of the unknown impact of the internet. Today's a day I feel overwhelmed and want to just spill it all out, but do I really want my great=grandchildren (or yours?) being able to access today's struggles generations from now? I just don't know! *sigh* Maybe I'll create a password protected blog where I can share all, yet not allow universal access to my thoughts???
How about you? Are you a tell-all kind of guy/gal when it comes to your health, or do you guard your information as private? I really can see both sides of the fence!

P.S. I'm on day 4 of a migraine I thought was resolving yesterday but was back with a vengance at 4am. I'm fighting for everything I'm worth to keep from throwing up because I'm afraid that once that part starts, it won't stop easily! (I've been continually nausious for about 5 weeks now with ongoing digestive issues, but this is a new migraine-related layer of nausia on top of the pre-existant virus or whatever it is I already had going on.) I had a 45 minute drive up curvy mountain roads (well ride actually, as I can't drive myself that far) for blood draws yesterday morning, followed by an hour back down the mountain and stopping at another doctor's office for follow-up x-rays on my foot. Today I see my primary care doctor to talk about the new medication that was called into my pharmacy yesterday that I'm not even sure what it's for, and Sunday I start IVIG treatments with my first IV anticipated to take 4-5 hours to administer and weekly infusions for the next 12 weeks. So there it is, today is a "spill it" day afterall.

P.P.S. I have not forgotten about the book give-away for Rain on Me, just haven't had a chance to select a winner yet. There were so many heartbreaking stories represented by your posts and I am praying for you each!

1 comment:

Mary Singer Wick said...


Sorry to hear you are really struggling with migranes. I will continue to pray the Father will touch you with His healing hands, and that you will have relief soon.

I can relate to your "scared to tell all" when it comes to different illnesses. If you've started reading my book "My Heart's Desire: A Journey Toward Finding Extravagant Love" you will see that I share some very personal struggles regarding my physical, emotional and spiritual health. While I do believe in privacy, I think we know when God is tugging at our heart's and asking us to share our "innermost" thoughts and fears. When given to Jesus first, He always uses it to encourage others. I know you understand this from your own story shared in "Hannah's Hope".

Press on, dear sister, as the Lord directs. I pray you have a great harvest for Jesus, and that you feel better soon.